Many of you do not know I am considered to be a slightly high risk pregnancy. Here is the back story (warning: be prepared for a dramatic telling, thanks to my 12th grade English teacher, Mrs. Miller!):
Junior High was a time of changes. Among those were a changing body and school sports. At this time I started noticing bum ankles, knees, elbows, etc, but we blamed it on body changes and sports injuries. Going into High School, things never got better. For basketball, I wore an ankle brace. For volleyball, I wore a knee brace. After my freshman year, I had a cyst removed in my ankle and under the cyst was a torn tendon. Disappointment set in when I realized I would be in a cast and boot for the rest of the summer, and as a result of the boredom, I dyed my hair fuschia (I looked for a picture and couldn't find one, I'll try and scan one tonight).
Here's the hair! Ignore how puffy I look, I didn't get to
work out much that summer!
Fast forward a few years. It was 2008, I was married and living in Boise, ID. At my yearly check-up, I happened to mention the joint pain and the lumps in my neck/ear area, where my salivary glands are. The doctor had a hunch and had my blood taken to check for a disease. Results came back positive: I have Sjogren's Syndrome.
So here's a little info on my disease:
It is an autoimmune disease (most of which are passed down; my dad has vitiligo: a disease that destroys the color cells of the skin). There is no cure, only medication to slow the progression. Most commonly, it is found in women in their 50's and older. Primarily, it affects my moisture producing glands. From the dryness in my salivary glands, the ducts would get blocked and causes the lumps. I've never been comfortable wearing contacts because my eyes are so dry. And lastly, the spaces in my joints have difficulty with lubrication which causes pain.
I am very grateful to have found out that I have this disease. Thankfully, I can slow the progression and I know the consequences of having a baby. Keep in mind that the following risk factors are very minimal and that my doctor, who specializes in high risk pregnancies, gave me the go-ahead to start a family. Baby has a slight risk in being born with congenital heart defects. As I get further in the pregnancy, if baby does have problems we will know before delivery and I will be delivering in Denver (will keep you posted). The other small risk factor is that baby may have infant lupus. If this happens, we will be watching baby but once his/her immune system kicks in, it will get rid of the lupus.
At the recommendation of my rheumatologist (yes, I'm 24 and have a joint doctor), I scheduled pre-conception counselling back in January. "How long do you think it will take for me to get pregnant?" I asked. The doctor, his nurse, and a resident all gave me anywhere from a month to a year for my current medication to wear off. And in less than a week, I was pregnant!
That's my story! For more info on Sjogren's Syndrome, please go to:
http://www.sjogrens.org/